22q11.2DS also referred to as VCFS (Velo Cardio Facial Syndrome) or DiGeorge, is the most common syndrome after Downs. 22q11.2DS is associated with over 180 different symptoms and is the second most common cause of congenital heart disease. It is the only syndrome linked to psychiatric issues. An estimated 32,000 children are born each year with 22q. Many children struggle with health issues and developmental delays for years before a healthcare professional identifies 22q as the cause. Some of the issues are mild, while others can be critical and cause lifelong negative effects if not treated appropriately. One person with 22q may battle 3 issues, while another may struggle to overcome 50 or more. If you have questions check out our links and resources, join us for coffee or contact Dr. Theresa Grebe, Genetic Counselor at Phoenix Children’s Hospital.
Our Mission Statement
The families in our group offer an emotional support system to one another in dealing with the daily life challenges from birth to adulthood common to 22q11.2DS. Hundreds of families in Arizona have a child and/or family member with 22q. Our goal is to create a cohesive network of health, education and social service professionals who can effectively advise every 22q11.2 DS individual and their families.
Thursday, March 6, 2014
8-9:30 pm EST
Join VCFSEF as we host a webinar by Mr. Hal Wright, Certified Financial Planner about financial planning for your family and your child with VCFS/22q11.2 deletion syndrome. Mr. Wright participated in the April 2013 “Knowledge is Hope” conference at Duke University where he presented information about how to make plans for your child with special needs.
Hal Wright CFP® has been married for forty years and has three adult children, one born with Down syndrome. He had a successful 27 year career in corporate finance, but in 2004 read an article in the Wall Street Journal about the scarcity of financial planners with expertise in special needs planning. He resigned his corporate position and established a financial planning practice focused on special needs planning. He graduated from the College of Financial Planning and earned the respected professional designation of Certified Financial Planner (CFP®). Now retired from professional practice, he is a frequent speaker on the topic and has presented to the Colorado Bar Association and the Women’s Estate Planning Council for CLE credit. He lives in Denver, Colorado.
Mr. Wright is the author of the book: The Complete Guide to Creating a Special Needs Life Plan A Comprehensive Approach Integrating Life, Resource, Financial, and Legal Planning to Ensure a Brighter Future for a Person with a Disability
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