Archive for the ‘Uncategorized’ Category
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22q In Review
Thank You Mountain States Genetics, Phoenix Childrens Hospital, GlobalMed, Dempster Foundation, and Genesis Worldwide for bringing 22q in Review to Phoenix!
To see the webinar go to Mountain States Genetics.
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Empowerment Scholarship Account
Is public school working for your child? The Empowerment Scholarship Account gives your child an opportunity for private school.
Arizona Department of Education Empowerment Scholarship
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Recommended Reading
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Welcome
22q at the Phoenix Zoo Sunday, May 19th
22q11.2DS also referred to as VCFS (Velo Cardio Facial Syndrome) or DiGeorge, is the most common syndrome after Downs. 22q11.2DS is associated with over 180 different symptoms and is the second most common cause of congenital heart disease. It is the only syndrome linked to psychiatric issues. An estimated 32,000 children are born each year with 22q. Many children struggle with health issues and developmental delays for years before a healthcare professional identifies 22q as the cause. Some of the issues are mild, while others can be critical and cause lifelong negative effects if not treated appropriately. One person with 22q may battle 3 issues, while another may struggle to overcome 50 or more.
Our Mission Statement
The families in our group offer an emotional support system to one another in dealing with the daily life challenges from birth to adulthood common to 22q11.2DS. Hundreds of families in Arizona have a child and/or family member with 22q. Our goal is to create a cohesive network of health, education and social service professionals who can effectively advise every 22q11.2 DS individual and their families.
