22q11.2DS also referred to as VCFS (Velo Cardio Facial Syndrome) or DiGeorge, is the most common syndrome after Downs. 22q11.2DS is associated with over 180 different symptoms and is the second most common cause of congenital heart disease. It is the only syndrome linked to psychiatric issues. An estimated 32,000 children are born each year with 22q. Many children struggle with health issues and developmental delays for years before a healthcare professional identifies 22q as the cause. Some of the issues are mild, while others can be critical and cause lifelong negative effects if not treated appropriately. One person with 22q may battle 3 issues, while another may struggle to overcome 50 or more.
Our Mission Statement
The families in our group offer an emotional support system to one another in dealing with the daily life challenges from birth to adulthood common to 22q11.2DS. Hundreds of families in Arizona have a child and/or family member with 22q. Our goal is to create a cohesive network of health, education and social service professionals who can effectively advise every 22q11.2 DS individual and their families.