Arizona
Velo-Cardio-Facial Syndrome
Family Support Group

Created by Happy Moms of VCFS Kids
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Last month one of our families attended the Behavior and Learning Conference held at UC Davis M.I.N.D. Institute in C.A.  The synopsis above is a valuable read.

Coffee Meeting 

Thursday, July 2, 2009
9:00 a.m.
at Starbucks
Tatum and Shea Blvd.
10625 North Tatum Boulevard
Phoenix, AZ 85028
(480) 607-0102

Velo-Cardio-Facial Syndrome (VCFS) is also called 22q11 or Shprintzen Syndrome and closely connected to DiGeorge Syndrome.  VCFS effects 1 in 2,000 births.  So if you are the parent of a child with VCFS in the Phoenix area you are not alone.  We are a dynamic group of Moms making Arizona a better place for families of VCFS.  We welcome you to join us for monthly informational meetings and annual Spring BBQ.  It is a great opportunity to find out what other families are doing for their children. In addition we can provide you with information about what services and therapies your child is entitled to in Arizona.  We have connections to quality Arizona healthcare and educational resouces.  For more information contact Jennifer Rockrich vcfsaz@gmail.com   

Listen to Diane Rehm on NPR with guests Quinn Bradlee and Dr. Robert Shprintzen
http://wamu.org/programs/dr/  




In the March 30th issue of Newsweek you can find an article by Quinn Bradlee a 26 year old with VCFS.  http://www.newsweek.com/id/190448
http://www.friendsofquinn.com/
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